Friday, March 6, 2009

5 for Friday

5 for Friday


Scentsability or something like that.


1.) Scentsy knockoff. I love this thing! Walmart sells these here for $12 .88 each; much cheaper than Scentsy. My favorite scent is a pineapple one. The only downside is Walmart only carried 3 different styles of these 'wax melters' and they sold out super quick. And all the fruity scented (my favorites) waxes are sold out too. The wax is $1.88 per package of 6-8 "chunks."


Kallie and Me.



2.) Today I got away for a fun lunch with my Sister, Kallie, at Temple Square. What a nice break, to get away for lunch. And our boys had a good time entertaining each other.



We ate at the Nauvoo Cafe. I ordered a salad that was super delish with baby greens, chicken, raspberries, caramelized walnuts and feta cheese. She got a chicken salad sandwich with cheddar cheese on the most buttery delicious white bread - YUM (she gave me a taste)!! The picture above is the Salt Lake Temple as I was driving away.



My Tyler (L) and her Zach (R). Kyle was crashed on the bench we were visiting at.



Kayla's magnet board from Young Womens.

3.) These are those magnet boards I mentioned that we gave the Girls for New Beginnings. You can also use a dry erase marker on them. I think they are super cute - we found them at The Wood Connection.


4.) My Mom and my Mother-in-Law are coming for visits next week.



5.) Being new to Utah, I wanted to check out IKEA. I finally made it over there (right before Kyle ended up in the hospital, ironically) and this is one of the great "finds" I found. It is perfect for all of Tyler's Preschool Art!


This little hanging display thing, I got at IKEA with Tyler's artwork inside.



Thursday, March 5, 2009

Thursday 3

Thursday 3


1.) After about 5 hours spent between being at Kyle's doctor appt. and traveling to and from the hospital, we were exhausted. But we got some informative news. They are referring to his condition as "Marker Negative Auto Immune Hepatitis." It is NOT, however, the type of Hepatitis that is infectuous. It is not a communicable disease. In this case, Hepatitis means swelling of the liver. (itis = swelling, hepa = liver). They cautioned us about even using the term hepatitis with anyone, because so many only think of it as a communicable disease.

On Monday Kyle's blood tests came down very little from the Thurs. before that. But they were still trending downward (though one of the numbers, his AST, actually went up a little). The doctor said most patients she see's in Kyle's condition would have responded better to the medication by now and their numbers would be back to normal already. That was frustrating to hear. Anyway, because of that he was put on another medication - one that he will have to take for the rest of his life. And I guess in 1-2% of patients they can actually contract a cancer of the bloodcells. I'm not excited about any of that. But we are between a rock and a hard place on getting his liver functioning again. And apparently the benefits are greater than the risks.

On a brighter note, I took Kyle in this morning for more blood work and his numbers have made significant progress since Monday (with the addition of this new medication, and many, many prayers). The doctors told us on Tuesday that they think it will take Kyle about 4-6 weeks for his numbers to be back to "normal." I am thinking it may happen faster than they are thinking!

2.) Yesterday was New Beginnings for Young Women. Our theme was "Everything we need to know we are learning in Young Women's." It was a busy time getting everything ready, but I think it turned out really well! Kayla was super excited about the cute magnet boards we made for the girls, along with a magnet that had each girls' initial on it. (I'll have to take a pic. and post it.)

3.) Kyle's faith amazes me. Today, as we were pulling out of the garage to go to the hospital for yet another blood draw (something he detests more than anything) he said, "Mom maybe we should say a prayer that it won't hurt so bad this time." I told him it was a great idea and asked him if he'd like me to say, or if he wanted to. He said he'd do it. So he said the sweetest, most humble prayer.

After an almost hour wait, they called him back. This time the phlebotomist got a collegue to help hold his arm (I was so relieved I did not have to do it this time - it's hard to have to submit my child to that). She got his vein the first time. On the way out Kyle told me that that was his "easiest time of getting a poke." He said he did not even feel the needle go in.

So we talked about how that must have been an answer to his prayer. He was sure it was. So I suggested he say a prayer of thanks, which he did. It was such a tender, tear filled moment. On the way home I asked him if he would like to drive past the temple. It is on our way, but it is faster to go another way, so we don't usually go that way. But he said yes, that he'd like to so we did. As we approached the temple Kyle said, "Mom the temple is so beautiful, don't you think?" Again it was just so touching!

Though this is a difficult trial to be sure, it is filled with so many sweet blessings. I definitely feel my Heavenly Father close as Laren and I try to work our way through all of this.

* Oh and a little sidenote, after all of that our house contract fell through - so no buyer afterall!

Tuesday, March 3, 2009

...

Today we have another appointment with the specialists at Primary Childrens Hospital. Yesterday I took Kyle to our local hospital for more bloodwork (it's weird you go to the hospital lab for bloodwork, in CO we always went to places like LabCorp, etc...).

Kyle's poor little arms are so bruised up. The phlebotimist tried to find a vein that was not so bruised. She found one, but couldn't get to it and had to dig. Ugh! The digging is always so painful. I had to cover Kyle's eyes. She called for help, but finally got it.

I'm hoping for good news at the doctor today. Kyle is hoping his blood sugars will get back to normal so he can get off his low carb diet. It really is hard to find things he can/will eat that are low carb. He is tired of beef jerky and string cheese.

And, crossing our fingers, we have our house under contract. Wouldn't you know we got the call on the way home from the hospital with Kyle last week. It is definitely a bad market to sell, so I wouldn't recommend unless you have to. But grateful, if this works out, that we can move on and get a house here for our family.

Monday, March 2, 2009

My Hometown

My Hometown



Most places have some claim to fame. Some are more famous than others. Some are known for their movie stars, their landmarks or their leaders. My hometown is known for this. The vermiculite was contaminated with tremolite asbestos -- a particularly toxic form linked to numerous illnesses including mesothelioma, a cancer that can attack the lining of the lungs, abdomen, or heart.

It is such a beautiful place that has housed a deadly poison in the soil of the WR Grace baseball fields that my brother played on in Little League, on the track at the High School where I cheered at many games and events, and in the garden soils of so many local homes.

I have a brother that has major lung trouble in which this asbestos filled vermiculite has adversly affected his lungs.

Such a crazy thing to be known for, especially for such a beautiful place. But when I saw this article on cnn.com, about a place I know well, I had to say a little something about it.

Libby, Montana

Saturday, February 28, 2009

Pictures and Blessings

Some pictures of our last 2 weeks


Kyle after we first started noticing he was jaundiced. (It is hard to tell in this picture, but it was very obvious in real life.) Before we knew just how sick he was.

Kyle in the hospital resting and a Fruit Bouquet sent to us by my Sista's.
Thank you so much - it was such an upbeat and yummy surprise to our week!

Kyle and I in his hospital bed. Sometimes a Mother has to lay down next to her child and give them the touch and closeness of a Mother's Love. I did this a few times when times were tough. Kyle makes life happy, even if it isn't!


The steroids Kyle is on sometimes makes his cheeks all puffy and rosy at the same time. He really dislike the hospital pj's, so he tried to put on one of his shirts almost all the time.



Kyle painting at the hospital. This picture depicts his jaundice better. He is painting a wood car that they brought him to glue together and paint. He usually wanted one of these cars for a reward for all the daily "pokes" he was getting.


----------------------------------------------------------------------

And some miracles that occured...

The past couple of weeks have taken a toll on Laren and I. We are both super tired. As most can imagine, the chair/bed in the hospital is not the greatest place to get sleep. I stayed with Kyle in the hospital every night until the last 2, when Laren slept there to give me a break. The emotional rollercoaster has been another factor in our ability to sleep and rest. We had been waiting on pins and needles to get the biopsy results and finally we got them last night. More than anything, I was so glad to hear that they found no cancer! They did find extensive liver damage. We will hopefully find out more about that when we go back to Primary Children's on Tuesday.


In the meantime Kyle is slowly recovering at home. He is SO glad he is not getting a bunch of "pokes" all the time and he has matured beyond his years in the past 2 weeks. I really am amazed by this huge trial, a trial that has surely been one of my most difficult. And of course, trials are a process and we are still in the midst of this process, but things are beginning to look up. We hope and pray that we have rounded that corner now, heading towards healing and good liver health for Kyle.

I know that the doctors who have been caring for him have been guided in their care. They told me on Wednesday that they do not know why, medically speaking, they are giving Kyle the treatment (medications) that they are because in all of their testing they have no physical evidence of Kyle having an auto immune problem. But what they do know, and me too, is that the medication is working. And so we are continuing it. And what I also know, is that Kyle's healing is miraculous, really and truly.


It is a modern day miracle just like what one would read in the New Testament of the Bible, only it is a miracle for our time. I know his healing so far has come about because of the Priesthood Blessing that Laren and my BIL, Doug, gave to Kyle, (and again 2 other blessings, with Laren and our home teacher Brother Bishop; and Laren and Trav, another BIL) that said the doctors would be guided as they go about trying to find a treatment for Kyle.


I saw this unfold before my very eyes as Dr. Jackson (a pediatric GI specialist caring for Kyle) struggled to find a treatment and couldn't find one and released us from the hospital. And then as Kyle's numbers were rising he called me at nearly 10:00 last Friday night to tell me he was concerned. Actually he left me an "urgent" message at 8:00 pm and I called him back at 10pm (Laren and I were out for a little bit when the message was left). And then again he called me back first thing in the morning around 8:15 am on a Saturday, his day off, to tell me he still was not satisfied and had already (since 10 pm the night before) went back through Kyle's records again, with a fine tooth comb, looking for something he might have missed; and he had consulted with 2 of his colleagues.


He decided Kyle needed to have some more bloodwork that morning and to be examined by him. He wanted to know how soon we could get there. So as soon as we were showered and dressed we were on our way back up to Primary Childrens. As we were there, he told me about Kyle's blood tests not really revealing too much - just ruling a bunch of stuff out. But his thyroid levels were slightly elevated. The thyroid can be considered part of the auto immune system of the body. But in order for the doctor to really say that it was auto immune attacking Kyle's liver, there needed to not only be an elevated thyroid, but also elevated ANA's (anti-nuclear antibodies). And Kyle's ANA's were not elevated. And we later learned his thyroid was not really elevated enough to consider it a threat.


And then the doctor got Kyle's blood clotting factor numbers back. His blood clotting factor had risen considerably. Meaning his blood was not clotting very much, a sign of his liver failing. So the doctor at THAT moment decided to re-admit Kyle to the hospital and at the same time decided to treat him as if it were something auto immune (like his thyroid) attacking his liver. We did that and we spent the next 2 hours in his office at the hospital while he made the necessary phone calls and did the necessary paperwork for Kyle to be admitted.


By that night, Kyle was receiving his first dose of Solumedrol - a type of Prednisone steroid. We were praying, along with many, many family, friends and strangers. The next day we had a family fast. Kyle's lab results came back on Sunday with significant improvement over Saturday. The doctors thought we were headed in the right direction, but I knew it. I knew it because of my Motherly intuition, I knew it because of our fasting and prayers, I knew it because of Laren's Priesthood blessing for our son.


The doctors anxiously awaited for Monday to see what Kyle's lab results would bring. Before they came, I knew Kyle's liver enzymes were falling. How? I felt it. I felt, literally the blessings that come from fasting and prayer. Prayers not just sent up for Kyle, but for Laren and I and the rest of our children. I felt the hope and assurance that can only come through the Savior's Healing Balm. And when the results came, again it was a decent improvement over the day before.


We do not know why this great trial had to come to Kyle or the rest of our family. But we do know we have learned so much in such a short amount of time and we have felt an increase of our faith. We have felt the love of so many. I have come to realize the existence, the true existence of angels on earth. It is through each of us that the Lord carries forth his purposes on earth. So many have went about helping us, watching Tyler for us each day so Laren could go to work while the kids were at school and I was at the hospital with Kyle; bringing in dinners to our family; bringing us groceries "just because they figured I had not had a chance to make it to the store yet..." (they were right); cards, flowers, balloons, phone calls, prayers, visits, fasting and expressions of love and concern.


Each day since last Saturday we have witnessed a physical improvement in Kyle with his liver enzymes dropping from over 7000 to 677 and 1400; with his bilirubin levels getting lower (from 17 to 7, so far), his color getting better and him not looking so jaundiced, etc... I know without a doubt that those doctors were guided. I know when Laren gives a blessing he will often tell me, "I don't know if it was my will or the Lord's but I think it was the Lord's will that I said that." He says that especially when he blesses someone that they will get better (as he did Kyle).


And though he blessed Kyle that he would get better and the doctors would be guided, it did also indicate that the healing might not come quickly. I want my sweet Husband to know that the Power of the Priesthood definitely works in him. And I am so grateful for that great Power in our home, that Laren is worthy to hold it and willing to exercise it. Kyle still has a road of recovery ahead of him, we are hoping it is not as long as it could be. In the meantime, we are counting our many, many blessings! And hopefully we will also be able to get some sleep!



Sigh

Well the good news is that no cancer was found in Kyle's biopsy. They did, however; find that his liver has suffered pretty extensive damage. They figure this has been going on where his liver has been being attacked for 2 months now. They determined that based on the scar tissue they found on the biopsy. That would have been right around the time we moved here.

They are still going along the lines that it is something Auto Immune related attacking his liver. Kyle doesn't like taking his meds, but he is a good sport and takes them anyway. He has always been a patient and mild mannered boy and this illness has made him that way even moreso!

I know we still have a long road of recovery, but I'm just so grateful there was no cancer. I was worried to the point I couldn't function, yet I was too nervous to call and get the results myself. Thankfully Laren did that for me.

Wednesday, February 25, 2009

Uncertainty

Uncertainty

I guess this is a true rollercoaster. Today, I found out that they indeed have not ruled out liver cancer. It does scare me. He will go in for his biopsy somewhere around noon. Any and all prayers appreciated. He is scared of the needle.

They tell us we won't have results for a week or so. But his numbers have come down some more today. Not really enough to make it so he won't have to get a blood/plasma transfusion, but at least the numbers are trending downward with this type of prednisone they have him on.

I have a faith in the Lord that He knows us and knows our situation and that He has a plan for us. It might not be the course we hope for, but it will be the course that is His will. I know we are not forgotten in Him.

Last night Laren and Trav (our BIL) came and gave Kyle another blessing for his biopsy today. Since Laren was already up there and he would stay home today to be at the hospital for Kyle's biopsy, he suggested I come home for the night for a break and he could stay there with Kyle.

So that is what we did. It was nice to sleep in my own bed and get a shower from our own shower this morning. The hospital shower is just a trickle. Plus I had forgotten my razor and had been unable to shave and it is so nice to not feel like an Orangutan with hairy pits! :)

Kayla had a preschool clinical today at school and she had to bring a preschooler, so she brought her preschooler brother, Tyler. I had to be here to take him to and from the Jr. High for Kayla.